Co-hosted by the COPD Foundation and Novartis Pharmaceuticals, and chaired by tech innovator and serial entrepreneur, Yossi Vardi, Crowdshaped was based on the principles of crowdsourcing, open innovation, and the understanding that in todays world, it takes more than one person, to come up with all the answers.
You wake up suffocating, you cant breathe. Thats what wakes you up, Cyndi Ruess, a patient with COPD , shared with the group at Crowdshaped. All the things that you did that make you you, you cant do anymore so you are just kind of a shell of the person you used to be.
COPD wont kill me. I will die of something else but it wont be COPD , added Devon Low, another patient with COPD.
These were just a few of the sentiments shared by three individuals affected by COPD who gathered in San Francisco this past June, along with more than 50 top thinkers from around the world, to brainstorm a number of innovative ideas that could radically improve the lives of individuals with respiratory diseases.
We are looking beyond pharma, we are looking beyond just the patients voice, we are looking at ideas that will really help improve our lives, said John Walsh, Co-Founder and President of the COPD Foundation.
Over two days the group divided into teams to tackle issues that patients face in everyday life. At the end of the first day, these same teams presented their findings to the entire group for consideration. Team presentations were filmed and then uploaded to the COPD Foundations social platform COPD360social that evening where community members were then encouraged to vote overnight on which ideas resonated the most with them. The top three winning ideas included amplifying COPD360social so that individuals could be connected more easily, optimizing morning wellness using a new modular architecture and sharing ideas of how people could live better with COPD in the home.
Moving into day two, teams worked closely together to address the feedback from the COPD360social community and developed responses and potential solutions on transforming these ideas into a reality.
As a result of the Crowdshaped event, the COPD Foundation has partnered again with Novartis to host three global events entitled the BREATHE Respiratory Hackathons which focused on morning wellness for COPD patients and how technology might be integrated to improve the quality of life for patients. Winning ideas from each of the events were being selected at the time of publication and will be covered in the next issue of COPD Digest.
In a video update, Karen Erickson, Alpha-1 Foundations associate executive director, and a participant on the Crowdshaped patient panel, thanked everyone and assured the group that their ideas would make a difference in millions of peoples lives.
Every single idea has components in this product and that should make you all very proud, said Erickson. We havent lost sight of how we started.