We trust that everybody survived the winter in reasonable health and are making plans to get plenty of exercise and outdoor time with family this summer.
Its been non-stop here at the COPD Foundation, with all the activities surrounding the momentum created by DRIVE4COPD, including our firstever DRIVE4COPD Pro-Am Celebrity Racing Challenge at the Auto Club Speedway in California on March 23rd. We created great COPD awareness around this event, and well be profiling some of the celebrities that participated in that event in future issues of the COPD Digest.
We profiled the consensus recommendations from the December COPD7USA Conference at the bi-annual meeting of the U.S. COPD Coalition this May. The discussion with all the stakeholders was exhilarating and were delighted that so many people have volunteered to get more involved in creating more awareness about COPD, focusing on early diagnosis and becoming more involved in both advocacy and research. As weve said so many times in the Digest, we cant overemphasize the importance of everyone taking responsibility and getting involved.
This issue of the Digest offers a variety of valuable information. Were pleased to feature the exercise series in all our issues this year. Its perfect timing to talk about exercise so that we can all be encouraged to become more active over the summer.
Another article of critical importance discusses lung transplantation. This procedure is a huge decision in anybodys life, and were pleased that Bonnie Chakravorty, Doug Turley and Mary Pierce have shared their experiences. We encourage anybody thats considering lung transplantation to talk with others that have gone through this process.
Dr. Brian Tiep contributed a very helpful article that discusses tips for visiting your doctors office, which should remind us all that its up to us to have meaningful dialogues with our individual healthcare providers. We have both the COPD Assessment Test (CAT) (www.copdfoundation.org) and our Big Fat Reference Guide (www.copdbfrg.org) that will help guide you through creating a dialogue with your physician.
As we pursue our goal of finding the 12 million symptomatic but undiagnosed Americans, the article on Asthma vs. COPD reminds us that many of us have gone through an initial diagnosis of asthma. There are many family members and friends who have asthma and dont respond to normal asthma medications who should be tested for COPD.
We can never recognize as many people in our community as wed like, but in this issue wed like to give special recognition to COPD Advocate Marshall Swanson for his participation in our advocacy efforts in Washington earlier this year and his great service as an Associate on the C.O.P.D. Information Line. His story emphasizes the importance of telling your COPD story and how you can make an impact in the legislative and health policy process. Remember, to sign up to be an advocate, visit (www.operation435.org).
Were delighted so many individuals with COPD joined us in San Francisco for our Meet the Expert session at the American thoracic Society conference in May. Every year we get more and more people involved, and we only wish we could do more events like this around the country.
Finally, wed like to remind everybody about the educational and informational resources we have for you and your family, and encourage you to visit our website at www.copdfoundation.org or call the C.O.P.D. Information Line (866) 316-2673. You can join us as a COPD advocate, enroll in our COPD research registry and
All thje best,
John W. Walsh