We applaud all of the friends, family members
and healthcare professionals who have joined
the platform to help stand by individuals
living with the disease offering advice, hope,
inspiration and friendship.
You may have read in our last Digest
feature (Vol. 11, No. 2. 2015) about the COPD
Foundations readmissions summits to address
and reduce avoidable readmissions. At the first
summit in 2013, one of the most significant
recommendations made by the expert group
of attendees was to develop an infrastructure
for front-line healthcare professionals, health
systems administrators and policy makers
that would support and further the national
hospital readmissions conversation. The COPD
Foundation and founding sponsor Sunovion
responded to this call.
Kitlowski suffers from primary ciliary dyskinesia
(PCD), a rare genetic disease that affects about 25,000
people in the United States with only 500 confirmed
cases. Primary ciliary dyskinesia is also sometimes
referred to as Kartagener syndrome or immotile cilia
syndrome. Cilia are minute hair-like projections from
cells which are found in various organs throughout
the body. Individuals with PCD have faulty motile
cilia resulting in patients experiencing recurrent
infections in the lungs, ears and sinuses as well subfertility
or infertility in both men and women.
In April 2015, the COPD Foundation announced
the launch of the Tennessee COPD Outreach
Initiative, the states first-ever community
outreach program designed to assist individuals
living with chronic obstructive pulmonary
November is quickly upon us and we are
gearing up for one of our busiest months at the
COPD Foundation COPD Awareness Month.
We have been working tirelessly to plan both
physical and virtual events around the country.
We hope you will join us in our quest to promote
our theme of Me and COPD. Please be sure to
visit the Foundation website for resources and
images to share with your friends and family
and follow all the discussions taking place on
Before we talk about getting rid of mucus, lets
talk about why we have it in the first place. In
normal, healthy lungs a thin layer of mucus lines the
airways (breathing tubes - bronchi and bronchioles).
Just underneath this mucus blanket are cilia, millions
of tiny hair-like structures. These cilia act like ocean
waves to move the mucus upward, to where it can be
coughed out. As it moves, the mucus carries trapped
dust, bacteria and other substances. This is how your
lungs keep themselves clean. It makes sense that this
is sometimes called the mucociliary escalator.
Mucus also acts to humidify the air you breathe.
As air makes its way through your airways, it passes
over the mucus, keeping air passages moist.
Maggie was an inspiration for me as she was for
so many others. She loved life and those who were
lucky enough to be a part of her world.